The Cure SMA Clinical Trial Experience Survey: A Study of Trial Participant Perspectives on Clinical Trial Management and Patient-Centric Management Practices

Faegre Drinker Consulting research and strategy director Ilse Peterson partnered with Cure SMA’s Allison Mazzella, Lisa Belter, Mary Curry, Rosángel Cruz and Jill Jarecki to publish research in Neurology and Therapy that highlights a study seeking to better understand clinical trial participant experiences and attitudes within spinal muscular atrophy (SMA), and how the evolving treatment landscape and participant characteristics may predict attitudes.

The authors explain that understanding clinical trial experiences can illuminate opportunities to optimize trial design and management, with potential benefits for recruitment and retention. The findings may inform study design and interactions with research patients.