The EveryLife Foundation for Rare Diseases

Nicholas Manetto joined a panel discussion at the EveryLife Foundation for Rare Disease’s Community Congress Annual Meeting focused on the political outlook of rare disease policy and what implications this will have for stakeholders. Bringing together patient organizations, health care industry representatives, biopharmaceutical companies and others engaged with rare diseases, the Annual Meeting serves as an engagement platform for the rare disease community to provide input and guidance directly to the Foundation.